WHAT IS RED NOSE DAY?
Red Nose Day is Cure Kids biggest annual appeal, and this September we need your help to raise $1 million for child health research.
When: Red Nose Day is throughout the month of September, with Red Nose Day itself falling on September 29th.
Why: To raise $1 million for child health research.
How do I get involved: Organise your school, business or community to host a fundraiser, get a red nose, volunteer, or donate.
With the incredible support of New Zealand, Cure Kids have been funding ground-breaking research for the past 46 years.
Since 1971, we have invested nearly $40 million into research which has helped shape and change the way children who live with serious diseases and health conditions are diagnosed and treated.
Some of the health research projects we have funded, or are currently funding include inherited heart conditions, childhood cancers, cystic fibrosis, sudden unexpected death in infancy, childhood cancers, stillbirth, burns, and mental health, among many others.
The outcomes of Cure Kids-funded medical research are everywhere, and thousands of us are alive and healthier today because of them. But we need your help to do so much more. There is vital medical research that needs to be done, yet is stalled, simply due to lack of funding.
With your help this Red Nose Day, we’re determined to change this and continue to make a difference to the health of children.
Right under your Red Nose could be the next life-saving breakthrough for our kids, will you join us this September?
How you’re making a difference
The money you raise during Red Nose Day helps fund research into the treatment and cures of serious health conditions that affect our kids.
Together, we have achieved breakthroughs that have saved, improved and extended the lives of kids here and around the world. We’re proud of what we’ve achieved, but the work has only just begun.
Learn more about some of the research projects you’ve helped us fund below:
Why we need your support
Babies are stillborn
Cure Kids have been instrumental in funding research that, for the first time, has shown that women who go to sleep on their back in late pregnancy are four times more likely to have a stillborn baby.
New Zealanders live with cystic fibrosis.
New Zealanders live with cystic fibrosis.
Cystic fibrosis (CF) is a genetically inherited condition affecting approximately 400 New Zealanders at any given time; half of which are children.CF is a respiratory condition that, if diagnosed in the 1960’s, one would be unlikely to live past 5 years of age. Today, the average life expectancy is over 35.
Cure Kids supported pioneering research that discovered a way to diagnose cystic fibrosis in a new-born babies by using the heel prick test. This test has been adopted internationally.
Cure Kids continues to fund research into improving health outcomes for children living with CF. We are currently funding a project investigating the identification of harmful bacteria in the lungs using a breath test.
If successful, this has the potential to greatly improve care and treatment.
Children are diagnosed with Batten disease
Children are diagnosed with Batten disease.
Batten disease is a rare inherited disorder of the nervous system that usually presents in early childhood, affecting approximately four New Zealand children per year. Symptoms include seizures, blindness and a shortened life expectancy. At present, there are no effective therapies for treating Batten disease.
Cure Kids has funded research into new treatments for Batten disease. A gene replacement therapy study demonstrated very promising results, with human trials currently being considered.
Cure Kids is also currently funding research investigating the use of two different cannabis derivatives, and how they might provide benefits to children with Batten disease or epilepsy.
Cure Kids are excited to be supporting these innovative research programmes which have the potential to improve, and save, lives worldwide.
Children experience a mental health issue
Children experience a mental health issue.
Disorders include anxiety, ADHD, autism, bipolar disorder, depression, eating disorders and schizophrenia.
Research shows that over half of all lifetime cases of mental illness present before the age of 14, yet 70% don’t receive necessary treatment, representing an urgent need for better care and treatment.
Cure Kids proudly funds research into mental health conditions.
Professor Sally Merry is a trained infant, child and adolescent psychiatrist, and is the Cure Kids Chair in Child and Adolescent Mental Health at the University of Auckland. She is investigating insights into the causes of mental health conditions and developing research-led treatments and prevention strategies with the aim of improving outcomes for young people and families.
Children will develop epilepsy
Children will develop epilepsy.
Approximately 450 children develop epilepsy each year. Constant seizures can lead to profound physical, psychological and social consequences for kids; also increasing anxiety and socially avoidant behaviour.
Overcoming knowledge gaps in epilepsy research is fundamental to reducing adverse effects and improving the quality of life of young people living with the condition.
Cure Kids have been supporting research, led by Associate Professor Lynette Sadleir, investigating the genes that cause epilepsy in children. This will enable specific treatments to be initiated, facilitate the future development of new targeted therapies and reduce the need for children to be subjected to further invasive and expensive investigations.
A/Prof Sadleir is a paediatric neurologist specialising in epilepsy. In collaboration with a Professor in Melbourne, A/Prof Sadleir has already delineated many new epilepsy syndromes and discovered half of the known epilepsy genes.
School days are lost to asthma
School days are lost to asthma.
Asthma is one of the most chronic conditions in childhood, with around one in seven New Zealand children taking asthma medication, placing New Zealand in the unenviable position of having the second highest prevalence in the world. Despite these high rates, compliance with preventative medications can be extremely low.
Cure Kids co-funded a trial testing the efficacy of a new smart-inhaler, SmartTrack, which acts as a reminder to children on asthma medication, while also providing detailed feedback to medical practitioners about patterns of use. This data is invaluable in designing patient-specific treatment.
The study resulted in an 84% compliance rate for those using the new inhaler, three-times that of the control group (those with standard inhalers). Corresponding improvements in coughing, wheezing, and quality of life were reported.